Amyloidosis Patient Experiences Survey (AMPES)
St Vincent’s Amyloid team invite all patients who have amyloidosis to take part in this research project. Amyloidosis is a significant health issue associated with a range of symptoms, which can impact quality of life. Additionally, amyloidosis remains underdiagnosed with limited access to testing and specialist services in some places. This is an anonymous survey designed to better understand the diagnostic experience, access to services and symptoms in patients with amyloidosis.
The online survey, which will likely take 15 minutes, is
- voluntary,
- anonymous
- all answers are confidential.
It can be completed by an amyloidosis patient or their representative. You will not be able to withdraw or change your answers once you submit.
Additional information can be found on the Participant Information Sheet linked below.
Any further questions or comments can be directed to the research team
(02 8382 3420 OR Natasha.gorrie@svha.org.au).
For complaints about the project or any questions about being a research participant in general, you can contact St Vincent’s Hospital Research Office
(02 8382 4960 or Svhs.research@svha.org.au)
and quote approval number 2025/ETH00396.
Thank you for your time and valuable input!
