Report from ISA Congress 2024 (Rochester)
The International Society of amyloidosis Congress was a fantastic week-long conference on all aspects of amyloidosis held in Rochester, Minnesota, [...]
Leukaemia Foundation launches new Optimal Care Pathways
The Leukaemia Foundation launches new Optimal Care Pathways or OCPs designed to improve patient outcomes by ensuring specialists, hospitals, [...]
Australian National Amyloidosis Day May 8, 2024 – video now available
May 8, Australian National Amyloidosis Day is a very important day for raising awareness about the group of complicated [...]
Tafamidis for ATTR CA listed on the PBS from May 1
PBS listing of Vyndamax®(tafamidis) 61mg for patients with transthyretin amyloid cardiomyopathy (ATTR-CM) with NYHA Class I-II heart failure.For more detailed [...]
AAN Mayo Clinic Travel Grant Winners
Congratulations to the three young researchers who are heading to the International Symposium of Amyloidosis at the Mayo Clinic on [...]
Mrs Patricia Neely – Member of the Order of Australia (AM)
Congratulations to our Pat Neely, newly appointed Member of the Order of Australia for her services for the [...]
PBAC recommends patisiran for ATTRv with neuropathy
Patisiran has been recommended by the Pharmaceutical Benefits Advisory Committee for those with hereditary transthyretin amyloidosis with polyneuropathy. [...]
Efficacy and Safety of Acoramidis in Transthyretin Amyloid Cardiomyopathy
Abstract Background Transthyretin amyloid cardiomyopathy is characterized by the deposition of misfolded monomeric transthyretin (TTR) in the heart. [...]
Consensus recommendations on holistic care in hereditary ATTR amyloidosis
Hereditary transthyretin-mediated amyloidosis is a rare, progressive and potentially life- limiting multisystem disease, affecting every aspect of a patient’s [...]
Positive progress towards Medicare funded access to Tafamidis and Patisiran for ATTR
PBAC has recommended PBS listing of Vyndamax®(tafamidis) 61mg for patients with transthyretin amyloid cardiomyopathy (ATTR-CM) with NYHA Class I-II [...]
Coronavirus: Instructions for amyloidosis patients
Vaccination is vital to help control COVID-19 and keep you and the community well. If we in Australia [...]
Expert consensus recommendations to improve diagnosis of ATTR amyloidosis with polyneuropathy
Authors David Adams Yukio Ando João Melo Beirão Teresa Coelho Morie A. Gertz Julian D. Gillmore Philip N. Hawkins Isabelle Lousada Ole B. Suhr Giampaolo Merlini Abstract Amyloid transthyretin (ATTR) amyloidosis with polyneuropathy [...]
