Coral – My 17 years Living with AL Amyloidosis.
My Name is Coral and my symptoms started on boxing day 2001 when I woke with swollen ankles and [...]
Miracle patient’s survival thanks to Australian-firsts
Article by Lauren Barker (first published on Central Adelaide Local Health Network) Lyall Pearce was feeling fit and healthy, [...]
A Difficult Journey to a Diagnosis of AL Amyloidosis
“Life need not be easy, provided only that it is not empty.” Lise Meitner. In 2014 I [...]
Proteomics to the rescue with a difficult diagnosis – Joe Kochman’s story
Following a 32-year career in plant pathology R&D for agricultural and biosecurity applications I was well-versed in DNA-based diagnostic [...]
From despair to hope: Neil and Linda Gibson’s experiences living with AL amyloidosis and raising money for amyloidosis research.
My name is Neil Gibson I was diagnosed in 2014 with stage 3 AL Amyloidosis. I had never ever [...]
Geoff and Ros Phillips’ story: Living with a rare type of hereditary amyloidosis
Geoff's story Geoff Phillips has a type of hereditary amyloidosis known as AGel or Gelsolin amyloidosis. My first possible [...]
Vince: His journey with hereditary ATTRv amyloidosis and helping others.
I am Vince O’Donnell. I have a slow but fatal genetic condition known as hereditary ATTR (ATTRv) Thr60Ala Amyloidosis with [...]
Crystal Lobban – My Father’s Story
The upheaval of Amyloidosis - Raising awareness in honour of my Dad My Dad was a very fit, healthy [...]
Laurie O’Donnell’s story
Laurie O’Donnell wrote his moving story in October 2017 in the last few weeks of his life. Laurie O’Donnell [...]
Ann’s story
I was diagnosed as a child with a disease called bronchiectasis. This chronic disease eventually caused my AA amyloidosis [...]
Ken’s Story – An occipital stroke led to a diagnosis of AL amyloidosis
In September 2019, after a couple of days being out of sorts, my then 76 year old husband Ken [...]
