Coral – My 17 years Living with AL Amyloidosis.
My Name is Coral and my symptoms started on boxing day 2001 when I woke with swollen ankles and a […]
Miracle patient’s survival thanks to Australian-firsts
Article by Lauren Barker
(first published on Central Adelaide Local Health Network)
Lyall Pearce was feeling fit and healthy, having just celebrated […]
A Difficult Journey to a Diagnosis of AL Amyloidosis
“Life need not be easy, provided only that it is not empty.”
Lise Meitner.
In 2014 I was diagnosed with […]
Proteomics to the rescue with a difficult diagnosis – Joe Kochman’s story
Following a 32-year career in plant pathology R&D for agricultural and biosecurity applications I was well-versed in DNA-based diagnostic technologies. […]
From despair to hope: Neil and Linda Gibson’s experiences living with AL amyloidosis and raising money for amyloidosis research.
My name is Neil Gibson I was diagnosed in 2014 with stage 3 AL Amyloidosis. I had never ever heard […]
Geoff and Ros Phillips’ story: Living with a rare type of hereditary amyloidosis
Geoff’s story
Geoff Phillips has a type of hereditary amyloidosis known as AGel or Gelsolin amyloidosis.
My first possible problem with amyloidosis […]
Vince: His journey with hereditary ATTRv amyloidosis and helping others.
I am Vince O’Donnell. I have a slow but fatal genetic condition known as hereditary ATTR (ATTRv) Thr60Ala Amyloidosis with […]
Crystal Lobban – My Father’s Story
The upheaval of Amyloidosis – Raising awareness in honour of my Dad
My Dad was a very fit, healthy and active […]
Laurie O’Donnell’s story
Laurie O’Donnell wrote his moving story in October 2017 in the last few weeks of his life.
Laurie O’Donnell was the […]
Ann’s story
I was diagnosed as a child with a disease called bronchiectasis. This chronic disease eventually caused my AA amyloidosis which […]
Ken’s Story – An occipital stroke led to a diagnosis of AL amyloidosis
In September 2019, after a couple of days being out of sorts, my then 76 year old husband Ken suffered […]
