Educational Media Resources

AL amyloidosis information guide (Myeloma UK)

Primary localised cutaneous amyloidosis

Disease and Treatment Overview: Wild-Type Amyloidosis

Disease Overview: Hereditary Transthyretin Amyloidosis

Disease Overview: Light chain (AL) amyloidosis

Amyloidosis

Neuropathy

Amyloidosis and Nutrition: Eating for health – ARC Talks

Diet and Nutrition AL amyloidosis Myeloma UK Leaflet

Arc Amyloid Neuropathy Physical Therapy exercises Recommended by ARC Talk

Rehabilitation Considerations in Amyloidosis: Practical help and Assistive Devices. Mayo Clinic

Emotional Aspects of Amyloidosis

Chronic Illness and Mental Health

Black dog institute Leaflets on:

  • Depression
  • Bipolar disorder
  • Anxiety & stress
  • Wellbeing
  • Seeking help
  • Mental Health for GPs
  • Specific Treatments

What is palliative Care?

Patient Information Record

The AAN Patient’s and Family Advisory Committee (PFAC) recommends that amyloidosis patients carry with them a complete and up-to-date Amyloidosis Patient Information Record. It asks that you introduce the document to the patient and encourage them to fill it in. This document would contain a record of their amyloidosis journey including amyloidosis type, impact, treatment and medications and include the names and contact details for all medical professionals involved in their care. It is seen as an effective and efficient communication catalyst between patient and medical professionals as well as ensuring all medical professionals treating them, including emergency responders, are fully informed of the patient’s condition and the others involved in their care. It has the potential to increase the patient’s understanding, involvement and ownership of their care leading to better treatment outcomes.

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