Can we help?

A diagnosis of any type of amyloidosis can be a shock and very confusing.

Wherever you live in Australia whether it be in the city or in a regional area the Australian Amyloidosis Network is here to try and support you.

We offer various types of support and education online through regular group support and education meetings, through our website and newsletters and in a one-to-one capacity via our TELEPHONE SUPPORT SERVICE.

Take a look below for information.

The AAN Telephone Support Service

1800 111 AAN (1800 111 226)

This service will be available on a Monday and Thursday between 8am and 4pm AEST. On other days if the phone is busy there will be the ability for you to leave a message, or to complete the form opposite.

This service is NOT a crisis service. If you need immediate help, please ring

Lifeline 13 11 14

Beyond Blue 1300 22 4636

Yarn 13 9276 (13 YARN)

The TS Service offers information, navigation, and support to people affected by amyloidosis, including patients and family members. The service supports understanding of the condition, navigation of the Australian health system, connection to practical supports, and emotional containment during illness, caregiving, and bereavement. And referral to other agencies as needed.

For more information click below.

Support request

Please complete the form below, and we will be in contact with you.

Support Request Form
Best method of contact

The website
aan.org.au

The web site provides a great deal of Information for patients’ carers and families and doctors and health professionals. The menu for information we provided can be accessed on the horizontal bar of the website under patients and carer.

Examples of some of the useful information available

Newsletters for patients
and families

A quarterly newsletter is distributed online quarterly for patients and families.

Facebook

The AAN Facebook Page is a welcoming space for people affected by Amyloidosis to connect, learn, and feel supported. It shares regular updates on in person and online events, including support meetings, information sessions, and guest webinars, helping our community stay connected wherever they are. The page also features trusted articles and resources about Amyloidosis, offering useful information and real life experiences. Through shared stories and open discussion, the AAN Facebook Page helps people stay informed, involved, and supported on their journey. Follow us now.

Come and Have a Cuppa with Cath

A supportive monthly Zoom gathering where patients and families from across Australia can connect, share experiences, and support one another.

Online education sessions

The AAN runs virtual education session throughout the year and face to face meetings every 2 years in the Australian capital cities.

Other relevant organisations

Contact details of useful organisations offering support and information to those affected by amyloidosis.

Did you know the AAN has a Patient and Family Advisory committee which can convey your ideas to the Board?