Video ResourcesAustralian Amyloidosis Network2026-02-27T18:16:47+11:00

Video Resources

About the Australian Amyloidosis Network

About the AAN

How can you support the AAN?

General amyloidosis information

What is amyloidosis? (includes WAD 2025 Dr Hasib Sidiqi)

Dr Hasib Sidiqi – WAD 2025

Dr Matthew Rubic – May 2025 Workshops

Amyloidosis and the Australian Health System

Genetic testing – what, when, who and how?

Amyloidosis Awareness (narrated by Michael York)

Cardiac Amyloidosis Patient Educational Video series

(produced by the AAN & SVHM)

What is cardiac amyloidosis?

How is cardiac amyloidosis diagnosed?

How is amyloidosis treated?

How will we know if the treatment is working? When can I expect to feel better?

Is cardiac amyloidosis hereditary? Should my family members be screened?

What are the potential complications of cardiac amyloidosis?

Are there any clinical trials or new treatments I can consider

Are there any lifestyle changes or precautions I should take?

Amyloidosis advocacy

Introduction to Amyloidosis Advocacy and the Amyloidosis Alliance

The Amyloidosis Alliance – bringing together voices from around the world to fight amyloidosis

AL amyloidosis

How I care for my patients with AL amyloidosis – Dr Efstathios Kastritis

ATTR amyloidosis

How I care for my patients with heart ATTR amyloidosis – Dr Carol Whelan

How I care for my patients with hereditary ATTR and nerve disease – Dr Yoshi Sekijima

Supportive care

How do I keep my organs healthy?

How to best care for my heart

How to best care for my kidneys

How to best care for my nerves

How best to manage your neuropathy and troubled bowels

Awaiting link to video.

How best to manage your breathlessness

Awaiting link to video.

How can I improve my quality of life?

Optimising my diet

Awaiting link to video.

Managing fatigue and asking for help

Awaiting link to video.

How to access nursing supports and education

Clinical Trials

Clinical Trials - Christina Ayers - WAD 2025

Australian updates on AL and ATTR amyloidosis – Kwok

Patient and Carer stories and Frequently Asked Questions

My AL story – fireside chat – David Wiggins

My ATTR story – fireside chat – Peter Stephens

My Journey – Evan Bittner

Question and answer session

A carer's journey to becoming a founding member of the AAN (WAD 2025) - Mrs Pat Neely AM

Dr Carol Whelan answers your questions about transthyretin amyloidosis

AGM Guest Presentations

2025 - Muhammed Sabdia

2024 - Professor Joanne Rees

2023 - Mrs Pat Neely

2022 - Professor Philip Hawkins (NAC London)