The State representatives of  AAN's Patient and Family Advisory Committee, PFAC , members invite you to join them on Saturday, July 30 for a one hour free virtual support meeting to meet other patients and families and discuss ways the PFAC and the AAN might improve quality of life for [...]

QUEENSLAND AMYLOIDOSIS SOCIAL SUPPORT GROUP.  AMYLOIDOSIS MORNING TEA THE MORNING TEA, PLANNED FOR TUESDAY THE 2nd of AUGUST HAS BEEN CANCELLED DUE TO CONCERNS OVER COVID. IT IS HOPED THIS EVENT WILL BE RESCHEDULED FOR EARY SEPTEMBER.    I am pleased to let you all know that we will once [...]

The International Symposium on Amyloidosis will be held in Heidelberg, Germany, September 4-8, 2022.  Places for the virtual program are still available. Board members Stefan Schönland and Ute Hegenbart will host the Symposium, with Carlos Fernández de Larrea and Maite Cibeira as co-organizers. Contact: info@isaamyloidosis.orghttps, http://www.isaheidelberg2022.org   `  

QUEENSLAND AMYLOIDOSIS SUPPORT GROUP MORNING TEA As Covid 19 now appears to be on the decline and the weather is  becoming warmer,  it seems a great time to get together and once again hold the Amyloidosis morning tea. The venue, time and place is set out below.  I am really [...]

  WORLD AMYLOIDOSIS DAY,  OCTOBER 26  World Amyloidosis Day is an initiative  of the Amyloidosis Alliance  < https://www.amyloidosisalliance.org> of which the Patients and Family Advisory Board,  PFAC,  is a member  AAN is a member. We invite you to view the  materiel that the Amyloidosis Alliance has put together to be [...]

Unfortunately the AAN had to cancel the education session planned for  patients and Families to celebrate world Amyloidosis Day on October 26. We would like to invite you to join us on Wednesday, November 2nd, for a new Education session for approximately 2 hours.  Times to tune in for the [...]

You are invited to join the Leukaemia Foundation virtual webinar on Travel and blood cancer: essential tips for a hassle free holiday Date: Tuesday 15 November 2022, 11.30am – 1pm AEDT. Where: Via Zoom This Webinar should be of interest to those patients who have myeloma and AL amyloidosis or [...]

  An invitation for amyloidosis patients living in or visiting Western Australia. Please come and join us for morning tea to relax,  support one another and share your stories. When: Tuesday, November 22nd Time:  10am. WA time Place:  Stickybeaks Cafe,  37 Kings Park Road. Perth. Near Royal Kings Park Tennis [...]

WA Amyloidosis Support Group Meeting. WA amyloidosis patient and families and those visiting WA, please join us for our first get together over coffee for 2023. Date: February 14th Time: 10am Place: Koorak Cafe, 37 Kings Park Rd, Kings Park To reduce any potential Covid issues, there are tables outside, [...]

    QUEENSLAND AMYLOIDOSIS  SUPPORT GROUP,  MORNING TEA  Date:      31st January. 2023 Time:      10.30 a.m. Venue:   Mt. Coot-tha Botanic Gardens Café, 152 Mt. Coot-tha Road, Mt. Cootha RSVP:      24.01.2023 Karen 'Donnell   Ph:   0418177371    Email:   karenod77@hotmail.com Message from Karen  I would like to take this opportunity to thank you all for [...]

The Amyloidoses are classed as rare diseases February 28 is Rare Diseases Day  View the many events around Australia and help raise awareness and generate change for the 300 million people world wide living with a rare disease, their families and carers. Go to: https://www.rarediseaseday.org to see how you can [...]