Hello and welcome

Amyloidosis is a group of rare, complex and serious diseases which are under-recognised and frequently misdiagnosed and/or diagnosed late.

This web site has been developed as a practical resource for Australian patients, their families and doctors/health professionals to enhance awareness and ensure timely and correct diagnosis and appropriate treatment of all types of amyloidosis.

Hello and welcome

Amyloidosis is a group of rare, complex and serious diseases which are under-recognised and frequently misdiagnosed and/or diagnosed late.

This web site has been developed as a practical resource for Australian patients, their families and doctors/health professionals to enhance awareness and ensure timely and correct diagnosis and appropriate treatment of all types of amyloidosis.

Donate to AAN
Find out more

The AAN receives no government funding so your donation means everything

Amyloidosis centres operate throughout Australia

AAN Centres & Affiliates
Find one near you
AAN Centres & Affiliates
Find one near you

Amyloidosis centres operate throughout Australia

Join the AAN
Become a member

Members are the lifeblood of the AAN

SOUTH AUSTRALIAN QUIZ NIGHT 90 people attended with everyone expressing how enjoyable the evening was particularly the burlesque dancers.

 The host, an amyloidosis patient and the chair of the philanthropy committee, Keith Moore was given a standing ovation for all his hard work in organising and running the event and for telling his own personal story.
Keith hopes to roll out similar evenings in the other states, so stay tuned.
Congratulations to the AAN Philanthropy committee who raised over $5000 at their on November 1 in Mt Barker Town Hall “Nadia says she is still trying to process what happened and that community was the huge winner and what stood out on the day. All the teams did exactly what we had in mind for the participation side of things- they showed us support and shared the load the entire journey. The energy from behind us is what got us to the end.” KIAMA ULTRA-CHALLENGE! The AAN is delighted and truly grateful to be one of the four charities including The Leukaemia Foundation, Breast Cancer Network Australia and Kiama Surf Club to benefit from the money raised from this incredible effort . What a wonderful achievement! As 2025 draws to a close, we want to take a moment to thank you for being part of the Australian Amyloidosis Network community. This year has been nothing short of extraordinary—filled with progress, collaboration, and initiatives that strengthen support for patients and advance awareness across Australia. Peter Mollee - Chair & Director, Australian Amyloidosis Network 2025 AAN Christmas Message VIEW FULL MESSAGE

UPCOMING EVENTS

VIEW FULL CALENDAR

What is Amyloidosis?

Amyloidosis occurs when a certain protein forms insoluble amyloid fibrils which progressively deposit and accumulate in tissues of the body disrupting normal organ function. Without treatment this may lead to organ failure.

At this time,  amyloidosis remains mostly incurable but treatable. This means that with timely introduction of therapy, the disease progression can be slowed and/or patients can enjoy periods of remission. Active research is currently underway to find a cure for amyloidosis.

Choose a link below to investigate types of Amyloidosis

Hereditary

AL

Localised

AA

ALECT2

Wild type ATTRwt

Hereditary

AL

Localised

AA

ALECT2

Wild type ATTRwt

What is the Australian Amyloidosis Network?

The Australian Amyloidosis Network is a not-for-profit company of patients, carers and health professionals working together to improve the lives of patients with all types of amyloidosis .

We endeavour to:

  • Improve  diagnosis, treatment, and quality of life for people with amyloidosis.
  • Provide  information and support for health professionals and people affected by amyloidosis
  • Undertake   amyloidosis research and advocacy.

In Australia there are currently five Amyloidosis Centres and four Affiliate Centres.