Hello and welcome

Amyloidosis is a group of rare, complex and serious diseases which are under-recognised and frequently misdiagnosed and/or diagnosed late.

This web site has been developed as a practical resource for Australian patients, their families and doctors/health professionals to enhance awareness and ensure timely and correct diagnosis and appropriate treatment of all types of amyloidosis.

Hello and welcome

Amyloidosis is a group of rare, complex and serious diseases which are under-recognised and frequently misdiagnosed and/or diagnosed late.

This web site has been developed as a practical resource for Australian patients, their families and doctors/health professionals to enhance awareness and ensure timely and correct diagnosis and appropriate treatment of all types of amyloidosis.

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Amyloidosis centres operate throughout Australia

AAN Centres & Affiliates
Find one near you
AAN Centres & Affiliates
Find one near you

Amyloidosis centres operate throughout Australia

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What is Amyloidosis?

Amyloidosis occurs when a certain protein forms insoluble amyloid fibrils which progressively deposit and accumulate in tissues of the body disrupting normal organ function. Without treatment this may lead to organ failure.

At this time,  amyloidosis remains mostly incurable but treatable. This means that with timely introduction of therapy, the disease progression can be slowed and/or patients can enjoy periods of remission. Active research is currently underway to find a cure for amyloidosis.

Choose a link below to investigate types of Amyloidosis

Hereditary

AL

Localised

AA

ALECT2

Wild type ATTRwt

Hereditary

AL

Localised

AA

ALECT2

Wild type ATTRwt

What is the Australian Amyloidosis Network?

The Australian Amyloidosis Network is a not-for-profit company of patients, carers and health professionals working together to improve the lives of patients with all types of amyloidosis .

We endeavour to:

  • Improve  diagnosis, treatment, and quality of life for people with amyloidosis.
  • Provide  information and support for health professionals and people affected by amyloidosis
  • Undertake   amyloidosis research and advocacy.

In Australia there are currently five Amyloidosis Centres and an Affiliate Centre.