Hello and welcome

Amyloidosis is a group of rare, complex and serious diseases which are under-recognised and frequently misdiagnosed and/or diagnosed late.

This web site has been developed as a practical resource for Australian patients, their families and doctors/health professionals to enhance awareness and ensure timely and correct diagnosis and appropriate treatment of all types of amyloidosis.

Hello and welcome

Amyloidosis is a group of rare, complex and serious diseases which are under-recognised and frequently misdiagnosed and/or diagnosed late.

This web site has been developed as a practical resource for Australian patients, their families and doctors/health professionals to enhance awareness and ensure timely and correct diagnosis and appropriate treatment of all types of amyloidosis.

Donate to AAN
Find out more

The AAN receives no government funding so your donation means everything

Amyloidosis centres operate throughout Australia

AAN Centres & Affiliates
Find one near you
AAN Centres & Affiliates
Find one near you

Amyloidosis centres operate throughout Australia

Join the AAN
Become a member

Members are the lifeblood of the AAN

Wherever you live in Australia whether it be in the city or in a regional area the Australian Amyloidosis Network is here to try and support you . We offer various types of support and education online through regular group support and education meeting, through our website and newsletters and in a one-to-one capacity via our TELEPHONE SUPPORT SERVICE. Can we Help? A diagnosis of any type of amyloidosis can be a shock and very confusing. FIND OUT MORE NEW! Explore the new patient educational videos on cardiac amyloidosis made by the AAN & SVHM View Videos

UPCOMING EVENTS

VIEW FULL CALENDAR

  • Jun 16, 2026       Time: 1:00 pm - 2:00 pm

    Leukaemia Foundation – Fatigue Series: Online Support Group: June 16

    Fatigue series – Watch & Wait webinar This series of sessions is for people on Watch & Wait who have NOT had any treatment for their blood cancer (chemotherapy / radiotherapy / immunotherapy).

  • Jun 23, 2026       Time: 1:00 pm - 2:00 pm

    Leukaemia Foundation – Fatigue Series: Online Support Group: June 23

    Fatigue series – Watch & Wait webinar This series of sessions is for people on Watch & Wait who have NOT had any treatment for their blood cancer (chemotherapy / radiotherapy / immunotherapy).

  • Jul 3, 2026

    Young Investigator Travel Grants

    The Australian Amyloidosis Network is pleased to open applications for a total of four Travel Grants to be taken up in 2026. Two of these grants have been kindly provided by the Rae and Peter Gunn family and two by the AAN.

  • Jul 6, 2026       Time: 2:00 pm - 4:00 pm

    A Cuppa with Cath – Jul 6 2026

    The ups and downs, ins and outs, and all things Amyloidosis.

What is Amyloidosis?

Amyloidosis occurs when a certain protein forms insoluble amyloid fibrils which progressively deposit and accumulate in tissues of the body disrupting normal organ function. Without treatment this may lead to organ failure.

At this time,  amyloidosis remains mostly incurable but treatable. This means that with timely introduction of therapy, the disease progression can be slowed and/or patients can enjoy periods of remission. Active research is currently underway to find a cure for amyloidosis.

Choose a link below to investigate types of Amyloidosis

Hereditary

AL

Localised

AA

ALECT2

Wild type ATTRwt

Hereditary

AL

Localised

AA

ALECT2

Wild type ATTRwt

What is the Australian Amyloidosis Network?

The Australian Amyloidosis Network is a not-for-profit company of patients, carers and health professionals working together to improve the lives of patients with all types of amyloidosis .

We endeavour to:

  • Improve  diagnosis, treatment, and quality of life for people with amyloidosis.
  • Provide  information and support for health professionals and people affected by amyloidosis
  • Undertake   amyloidosis research and advocacy.

In Australia there are currently five Amyloidosis Centres and four Affiliate Centres.