A look at the emotional and psychological effects of diagnosis
A diagnosis of amyloidosis can be life‑altering—not only physically, but emotionally and psychologically as well. Beyond the medical uncertainty [...]
2025 Amyloidosis Alliance Conference in Baveno, Italy,
I had the honour and privilege of attending the 2025 Amyloidosis Alliance Conference in Baveno, Italy, as a representative [...]
Joyce Van Kleef
In 2013 I started to develop numbness and pain in my hands and in my legs from the knees [...]
AAN announces appointment of part-time Telephone Support Manager
The AAN is delighted to announce the appointment of a part time Telephone Support Manager, Jessica Schwendinger.This appointment is wonderful achievement made [...]
Congratulations to the Leukaemia Foundation on 50 years of service
For 50 years the Leukaemia Foundation has been delivering care, driving research and supporting Australians impacted by blood cancer This organisation [...]
Pfizer funding to increase awareness about cardiac amyloidosis
Pfizer funding to increase awareness about cardiac amyloidosis St Vincent’s Hospital Melbourne and the Australian Amyloidosis Network are partnering [...]
End of Financial Year Donation Appeal
End of Financial Year Donation Appeal Over 1000 Australians are currently being treated for amyloidosis - but [...]
Amyloidosis Patient Experiences Survey (AMPES)
Amyloidosis Patient Experiences Survey (AMPES) St Vincent's Amyloid team invite all patients who have amyloidosis to take part in [...]
Amvuttra (vutisiran) and Onpattro (patisiran) now listed on PBS
Both Amvuttra (vutisiran) and Onpattro (patisiran) are now listed on the PBS for treatment of hereditary ATTR amyloidosis with [...]
Living with of Lichen Amyloidosis
My name is Sean, and my Amyloidosis story began in 2011 when I started experiencing itchy skin. The doctors [...]
The AAN is proud to announce the launch of it’s Offical Facebook Page
The AAN Facebook page forms part of the AAN’s Communications Strategy and will be used as a news and [...]
CMANZ are looking for patients with ATTRwt to tell their story
Cardiomyopathy Australia New Zealand (CMANZ) is a registered not-for-profit soclely focused on supporting and advocating for individuals impacted by [...]
