Cardiomyopathy Australia New Zealand (CMANZ) is a registered not-for-profit soclely focused on supporting and advocating for individuals impacted by cardiomyopathy. Patient-led, , our vision is that those impacted by cardiomyopathy in Australia and New Zealand are supported, informed, and heard. Visit their website https://www.cmanz.org.au or get in touch via info@cmanz.org.au. CMANZ [...]
Special Presentation - A Short History of Amyloidosis Professor Philip Hawkins FMedSci First clinical director of the NHS National Amyloidosis Centre at The Royal Free. Principal Research Fellow at University College London. Recipient of the AAN’s first emeritus membership
Special Presentation on the occasion of the farewell of Mrs Pat Neely Mrs Pat Neely AM BA Sociology, AMIMSW, Graduate Certificate Journalism.
Like many people, I was looking forward to retiring, travelling, and trying to get fit - yet I was having trouble even walking up steps and certainly had no chance on a steep hill. My name is Susan Booth and in 2021 I was diagnosed with AL amyloidosis secondary [...]
Special Presentation - Understanding Amyloidosis through Laboratory Research Dr Joanne Reid Director of the Centre for Immunology and Allergy Research at the Westmead Institute for Medical Research Adjunct Associate Professor at the University of Sydney and University of New South Wales
The AAN warmly congratulates Muhammed B. Sabdia, a final year PhD student at the Mater Research Institute, The University of Queensland who was awarded the Snowdome, 2024 Gunn family haematology fellowship In April, and with continued generous funding from the Gunn Family Foundation, Snowdome Foundation invited applications for [...]
If you a patient with ATTRv with polyneuropathy, or a carer, friend, family member or health professional treating a patient with these problems the PBAC invites you to make a submission on their consumer portal.
My Amyloidosis Story My name is Sue Birdsall and I am 79 years old. In April 2016 I was diagnosed with AL Amyloidosis affecting my heart. I have intended to write my story for some time. Now seems particularly pertinent as I am currently in remission after 7 long [...]
The Leukaemia Foundation launches new Optimal Care Pathways or OCPs designed to improve patient outcomes by ensuring specialists, hospitals, GPs and ultimately patients have access to nationally consistent best practice treatment, care and information. Two of the new OCPs are AL amyloidosis and Myeloma and may be of interest [...]
May 8, Australian National Amyloidosis Day is a very important day for raising awareness about the group of complicated relatively rare diseases, referred to as amyloidosis. This year the Australian Amyloidosis Network AAN conducted a virtual education meeting for patients and families. The meeting was arranged and chaired by [...]
PBS listing of Vyndamax®(tafamidis) 61mg for patients with transthyretin amyloid cardiomyopathy (ATTR-CM) with NYHA Class I-II heart failure. For more detailed information use this link to the PBS website. Then click on 'Authority Required' (see sample link below) on the PBS website. Important information for patients [...]
Congratulations to the three young researchers who are heading to the International Symposium of Amyloidosis at the Mayo Clinic on AAN travel grants Photo by Leslie Beasley on Unsplash The AAN Board is delighted to announce the award of travel grants of $5000 to three Young Australian researchers to attend the [...]
