Perth Amyloidosis Support Group - Australian Amyloidosis Network

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Home
- What is the AAN?
Patients and Carers
Health Professionals
Clinical Trials
AAN Resources
- Amyloidosis Workshop 2021
  - Patients & Carers webcast recordings
  - Health Professionals webcast recordings
Events
Contact Us

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2022-12-01T00:00:00+11:00

This event has passed.

Perth Amyloidosis Support Group

Dec 3, 2019 Time: 10:00 am

Coffee and cake provided by the Leukemia Foundation

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“Good Life-Good death” Community Expo
QLD AMYLOIDOSIS SOCIAL SUPPORT GROUP

Details

Date:: Dec 3, 2019
Time:: 10:00 am
Event Category:: Social

Venue

Ikea Cafe

6 Sunray Drive
Innaloo, Western Australia 6018 Australia + Google Map

Suggested Questions to ask your Doctor

Have you treated many patients with amyloidosis?
What sort of amyloidosis do i have?
What proof is there that I have that type of amyloidosis?
Why do you think the treatment you are suggesting will help me?
What exactly is the treatment and what does it do?
Will this slow my disease or cure it?
Will the treatment make me sick?
How have other patients found this treatment?
How will I you know if the treatment is working and what are the tests that indicate this?
What happens if the treatment does not work or upsets me?
Why is there little treatment for my type of amyloidosis?
Can I work?
How can I help myself?
What information about my disease do you recommend?
Can I meet other patients with my type of amyloidosis?

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FINANCIALLY SUPPORTED BY:

The Neely-Rice Family in memory of Dr Meryn Neely who died in 1998 from AL cardiac amyloidosis.