A virtual discussion meeting for patients on the latest Australian trials and treatments.
virtualThe AAN invites patients and families to join Dr. Simon Gibbs, the medical Director of the Victorian and Tasmanian Amyloidosis Service and Chairman of the AAN and Pat Neely, Director of the AAN and Patient Advocate, to a 2 hour virtual update and discussion on trials and treatments available for [...]
Rare Diseases Day
The Amyloidoses are classed as rare diseases February 28 is Rare Diseases Day View the many events around Australia and help raise awareness and generate change for the 300 million people world wide living with a rare disease, their families and carers. Go to: https://www.rarediseaseday.org to see how you can [...]
Australian Amyloidosis Network’s 2023 Education Workshops.
various All States, AustraliaRegister here
National Palliative Care Week
National Palliative Care Week runs, 21 May to 27 May 2023 and aims to put ‘Matters of Life and Death’ front and centre in Australia’s consciousness. Camilla Rowland, Chief Executive Officer at Palliative Care Australia (PCA) says, “We understand that death and dying is a difficult subject to talk about and [...]
WA Amyloidosis Support Group meeting
Koorak Cafe 37 Kings Park Rd, Kings Park, Perth, AustraliaWA Amyloidosis Support Group Meeting Date: Tuesday, June 13th Place: Koorak Cafe, 37 King's Park Rd, Kings Park. Time: 10am, WA time. We do hope you will join us.
Queensland Amyloidosis Support Group Morning Tea
Mount Coot-tha Botanics Garden, Cafe. 152, Mount Coot-tha Rd,, Mount Coot-tha, QueenslandIt is always so great to catch up with many of you over a cup of tea and something to eat and sometimes share lunch with you all So once again I am convening a morning tea for all those interested. I am really looking forward to seeing you all [...]
Leukaemia Foundation online General Evening group – June 27
virtualAlthough Leukaemia and Amyloidosis are different diseases the emotional journey experienced by many people with either of these diseases is similar. A number of you may therefore find the leukaemia Foundation’s on line support programs useful. Please see below. Booking must be done through the Leukaemia Foundation with the links [...]
Leukaemia Foundation online Webinar – July 7th
Virtual eventAlthough Leukaemia and Amyloidosis are different diseases the emotional journey experienced by many people with either of these diseases is similar. A number of you may therefore find the leukaemia Foundation’s on line support programs useful. Please see below. Booking must be done through the Leukaemia Foundation with the links [...]
Leukaemia Foundation online Support Group – July 13th
Virtual eventAlthough Leukaemia and Amyloidosis are different diseases the emotional journey experienced by many people with either of these diseases is similar. A number of you may therefore find the leukaemia Foundation’s on line support programs useful. Please see below. Booking must be done through the Leukaemia Foundation with the links [...]
The Victorian Amyloidosis Facebook Support Group catch up.
The Moonee Ponds Club 622 Mount Alexander Rd, Melbourne, Victoria, AustraliaPlease Join us for the first Victorian Amyloidosis Facebook Support Group catch-up. Date: Tuesday, July 25 Time: 10.15am Venue : The Moonee Ponds Club, 622 Mt Alexander Road, Moonee Ponds The club opens at 10.00 am there will be a table booked. Free Parking is available on-site. RSVP to Corinna [...]
WA Amyloidosis Support Meeting
Koorak Cafe 37 Kings Park Rd, Kings Park, Perth, Australiaif you were diagnosed with amyloidosis recently or some time ago, come and share your stories and possibly meet patients with the same type of amyloidosis as you have. We would love to see you there. Date: August 8 Time: 10am WA time Place: Koorak Cafe, 37 Kings Park Rd, [...]
Education Webinar: Complementary therapy and blood cancer
Virtual eventAugust: Online Support Groups (registration essential) Topic: Self-care (Topic for bereavement group = loneliness) Education Webinar: Complementary therapy and blood cancer – Professor David Joske. We have invited Professor Joske who spoke at our face to face patient conference in 2018. He is a Haematologist (now semi-retired) and was the [...]