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    • What is the AAN?
    • Annual Governance Documents
  • Patients and Carers
    • What is Amyloidosis
    • Amyloisosis Types
      • AL
      • Hereditary Amyloidosis
      • ATTR types
        • Hereditary ATTR (ATTRv)
        • Wild Type ATTR (ATTRwt)
      • Localised Amyloidosis
      • AA amyloidosis
      • ALECT 2 Amyloidosis
      • Dialysis-related Amyloidosis
    • Living with Amyloidosis
    • Patient Experiences
    • Organ Involvement
      • Heart
      • Kidney
      • Nerves
      • Gut
    • Research and Clinical Trials
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    • Relevant Organisations
  • Health Professionals
    • What is Amyloidosis
    • The Basic Workup
    • Amyloidosis Types
      • ATTR
      • AL
      • Localised Amyloidosis
      • AA
      • Hereditary Amyloidosis
      • Other
    • Cardiac Amyloidosis for Cardiologists
    • Organ Involvement
      • Heart
      • Kidney
    • Clinical & Laboratory Centre Contacts
  • Clinical Trials
  • Video Resources
    • AGM Presentations
      • AAN AGM 2024 – Dr Joanne Reid
      • AAN AGM 2023 – Mrs Pat Neely AM
      • AAN AGM 2022 – Professor Philip Hawkins
      • AAN May 8 video recording
    • Amyloidosis Workshop 2023
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NewsAustralian Amyloidosis Network2022-10-18T10:36:33+11:00

Suggested Questions to ask your Doctor

Have you treated many patients with amyloidosis?
What sort of amyloidosis do i have?
What proof is there that I have that type of amyloidosis?
Why do you think the treatment you are suggesting will help me?
What exactly is the treatment and what does it do?
Will this slow my disease or cure it?
Will the treatment make me sick?
How have other patients found this treatment?
How will I you know if the treatment is working and what are the tests that indicate this?
What happens if the treatment does not work or upsets me?
Why is there little treatment for my type of amyloidosis?
Can I work?
How can I help myself?
What information about my disease do you recommend?
Can I meet other patients with my type of amyloidosis?
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FINANCIALLY SUPPORTED BY:

The Neely-Rice Family in memory of Dr Mervyn Neely who died in 1998 from AL cardiac amyloidosis.
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