The Western Australian Amyloidosis Support group

Bayside Kitchen Crawley, Perth, Australia

The WA Amyloidosis Support group will meet for the first time since the Covid-19 shut down. Everyone is welcome. Date: Tuesday August 4 Time: 10am Place: Bayside Kitchen, Crawley. For more information contact Gerry Ligtermoet GerryL@iinet.net.au 0499 988 073

The PA Giving Day. Donate for Amyloidosis Research

VIRTUAL platform

The Princess Alexandra Hospital Amyloidosis Centre aims to improve the diagnosis and treatment of all patients with amyloidosis. This is being done through a program of co-ordinated clinical care, patient education and support, training of doctors and research into better diagnostic and monitoring tools, as well as clinical trials of new [...]

World Heart Day, Featuring Cardiac Amyloidosis

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Visit the cardiac amyloidosis landing page on the World Heart Day website and hear from two amyloidosis heart heroes: Dr. John Pasternak from Canada, who talks about living with wild-type ATTR-CM and Vince & his wife Terri from Australia, who share their experience with the hereditary form. There is also [...]

The Australian Amyloidosis Network’s Education Meeting for Patients and Families

VIRTUAL platform

The AAN invites patients and families to join a virtual education meeting. Two of the AAN doctors  will reflect on interesting papers presented at the recent virtual International Symposium on Amyloidosis, conducted from  September 14th to the 18th.  Over 1000 people registered for this meeting. Speakers: Dr Fiona Kwok, Director [...]

Queensland Amyloidosis SOCIAL SUPPORT GROUP – MORNING TEA

Mt Coot-tha Botanical Gardens Cafe 152 Mount Coot-tha Rd, Mount Coot-tha, QLD, Australia

Hi everyone.   I am excited to be able to write to you all and hope that you are all looking after yourselves and continuing to be well.  It has been quite some time since we have been able to meet for our morning tea.  Who would have thought in January [...]

A follow up virtual meeting to discuss patient and family representation on the AAN

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The Australian Amyloidosis Network was formed in 2015 through a loose amalgamation of the, then, three Australian Amyloidosis Centres in Brisbane, Sydney and Melbourne. A Centre has since been formed in Perth.  Talks are now in progress  between the acting AAN executive committee and a lawyer to form the AAN [...]

Blood 2020

Adelaide Convention Centre North Terrace, Adelaide, South Australia, Australia

The combined scientific meetings of: Haematology Society of Australia and New Zealand, Australian and New Zealand Society of Blood Transfusion Thrombosis and Haemostasis society of Australia and New Zealand

62nd ASH annual meeting and exposition

VIRTUAL platform

This premier event in malignant and non-malignant haematology, which was  originally planned to be held in San Diego, CA, USA will be an all-virtual meeting this year This conference will be delivered in American Eastern time . Please refer to  information on the conference at  hematology.org

Presentation of Results from the CC-DR Australian PEEK study in Amyloidosis

VIRTUAL platform

You are invited to join The Centre for Community-Driven Research as their CE Dr Catherine Holliday  presents the results of their Australian PEEK study in amyloidosis. This session will be quite relaxed with plenty of opportunity for questions and interaction. As CC-dr  do not want the results of the study to [...]