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About Inky Smudge

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So far Inky Smudge has created 4 blog entries.

Amylife Global Survey

How is your life with amyloidosis? Please tell us by completing the  Amylife International Survey AMYlife is a world-wide independent survey to better understand the impact of amyloidosis on your health, its effects on your quality of life, and much more… Read more about the [...]

2025-02-05T14:50:42+11:00November 24th, 2024|Uncategorized|

Cath Davies – This is my amyloid journey!

I’m a 62-year-young retired ICU nurse with a long career in critical care and medical education, so finding out I had AL Amyloidosis was a huge shock. My reaction? “What the @#$% is that?” I already had SLE and MGUS, and I’d been on IV immunoglobulins since 2004—yet somehow, [...]

2024-11-16T09:45:44+11:00November 16th, 2024|Patient Experiences|

Report from ISA Congress 2024 (Rochester)

The International Society of amyloidosis Congress was a fantastic week-long conference on all aspects of amyloidosis held in Rochester, Minnesota, the home of the Mayo Clinic. There were over 1000 attendees and a huge Australian turnout of 20 + clinicians and nurses, strongly representing the Australian Amyloidosis Network. We enjoyed [...]

2024-07-30T09:51:30+10:00July 30th, 2024|Blog, Latest News., Uncategorized|

Mrs Patricia Neely – Member of the Order of Australia (AM)

Congratulations to our Pat Neely, newly appointed Member of the Order of Australia for her services for the amyloidosis community. The AAN proudly congratulates Pat Neely, a founding member and recently retired Board member the AAN who has been appointed a Member of the Order of Australia (AM). [...]

2024-02-02T10:16:36+11:00February 2nd, 2024|Latest News.|
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