National Amyloidosis Day, May 8
National Amyloidosis Day, May 8 National Amyloidosis Day, May 8 is a day the Australian Amyloidosis Network, AAN, marks to pause and think about those patients and families [...]
The AAN is proud to announce the launch of it’s Offical Facebook Page
The AAN Facebook page forms part of the AAN’s Communications Strategy and will be used as a news and announcement tool for important AAN updates/events for both patients and health [...]
CMANZ are looking for patients with ATTRwt to tell their story
Cardiomyopathy Australia New Zealand (CMANZ) is a registered not-for-profit soclely focused on supporting and advocating for individuals impacted by cardiomyopathy. Patient-led, , our vision is that those impacted by cardiomyopathy [...]
Amyloidosis from Bench to Bedside and Back Again
Call for Early Career Travel Award Applications The International Society of Amyloidosis (ISA) will host on October 13-14 a small invitation-only workshop “Amyloidosis, from Bench to Bedside and Back Again” at the Collegio Fondazione Ghislieri in Pavia, Italy. To [...]
Snowdome 2024 Haematology fellowship for work in AL amyloidosis
The AAN warmly congratulates Muhammed B. Sabdia, a final year PhD student at the Mater Research Institute, The University of Queensland who was awarded the Snowdome, 2024 Gunn family [...]
PBAC invites submissions from ATTRv patients with neuropathy (now expired)
If you a patient with ATTRv with polyneuropathy, or a carer, friend, family member or health professional treating a patient with these problems the PBAC invites you to make a [...]
Report from ISA Congress 2024 (Rochester)
The International Society of amyloidosis Congress was a fantastic week-long conference on all aspects of amyloidosis held in Rochester, Minnesota, the home of the Mayo Clinic. There were over 1000 attendees [...]
Leukaemia Foundation launches new Optimal Care Pathways
The Leukaemia Foundation launches new Optimal Care Pathways or OCPs designed to improve patient outcomes by ensuring specialists, hospitals, GPs and ultimately patients have access to nationally consistent best practice [...]
Australian National Amyloidosis Day May 8, 2024 – video now available
May 8, Australian National Amyloidosis Day is a very important day for raising awareness about the group of complicated relatively rare diseases, referred to as amyloidosis. This year the Australian [...]
Tafamidis for ATTR CA listed on the PBS from May 1
PBS listing of Vyndamax®(tafamidis) 61mg for patients with transthyretin amyloid cardiomyopathy (ATTR-CM) with NYHA Class I-II heart failure.For more detailed information use this link to the PBS website. Then click on [...]
AAN Mayo Clinic Travel Grant Winners
Congratulations to the three young researchers who are heading to the International Symposium of Amyloidosis at the Mayo Clinic on AAN travel grants Photo by Leslie Beasley on Unsplash The AAN [...]
Mrs Patricia Neely – Member of the Order of Australia (AM)
Congratulations to our Pat Neely, newly appointed Member of the Order of Australia for her services for the amyloidosis community. The AAN proudly congratulates Pat Neely, a founding member [...]
