Queensland Amyloidosis Social Support Group, QASSG

Mt Coot-tha Botanical Gardens Cafe 152 Mount Coot-tha Rd, Mount Coot-tha, QLD, Australia

The QUEENSLAND AMYLOIDOSIS SOCIAL SUPPORT GROUP. (QASSG) is a social support group for patients and families whose lives have been affected by any type of amyloidosis.

New Zealand Amyloidosis Patient’s Association (NZAPA) 2020 Patient and Carer Workshop CANCELLED

Clinical Education Centre, L5 Building 32. Auckland City Hospital 2 Park Road, Grafton, Auckland, New Zealand

A panel of top medical experts will be on-hand to explain everything regarding the diagnosis, subtyping, care of Amyloidosis, the effects of the disease on the heart and the management of FAP in New Zealand. There will be Q&A sessions where all your questions about your disease will be answered. [...]

Free

Amyloidosis Patient and Family Afternoon Tea, online. Register Here.

The Australian Amyloidosis Network in partnership with The Centre for Community Driven Research will host an on-line afternoon tea and chat for patients across Australia. Times: 4-5pm AEST (Queensland, NSW, Victoria, Tasmania and ACT). 3.30 in South Australia. 2pm in Western Australia. Registrations close Tuesday 14th at 10.00am. To register [...]

Amyloidosis Day. The AAN invites amyloidosis patients and carers to join an online education meeting – Register here.

Patients and carers are invited to join the Australian Amyloidosis Network’s (AAN) online education meeting  to celebrate National Amyloidosis Day the following day and hear three of the amyloidosis specialists talk about developments in amyloidosis care, followed by questions. Speakers: Dr. Peter Mollee. Haematologist, PAH amyloidosis Centre, Brisbane. Dr. Sidiqi [...]

Free

National Palliative Care Week

various All States, Australia

 National Palliative Care Week (NPCW) will be held from Sunday 24 May – Saturday 30 May, with the theme “Palliative Care… It’s more than you think”. Palliative care can help people with life-limiting illnesses to live as well as possible, for as long as possible – supporting their physical, emotional, [...]

The Western Australian Amyloidosis Support group

Bayside Kitchen Crawley, Perth, Australia

The WA Amyloidosis Support group will meet for the first time since the Covid-19 shut down. Everyone is welcome. Date: Tuesday August 4 Time: 10am Place: Bayside Kitchen, Crawley. For more information contact Gerry Ligtermoet GerryL@iinet.net.au 0499 988 073

The PA Giving Day. Donate for Amyloidosis Research

VIRTUAL platform

The Princess Alexandra Hospital Amyloidosis Centre aims to improve the diagnosis and treatment of all patients with amyloidosis. This is being done through a program of co-ordinated clinical care, patient education and support, training of doctors and research into better diagnostic and monitoring tools, as well as clinical trials of new [...]