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CMANZ are looking for patients with ATTRwt to tell their story
Cardiomyopathy Australia New Zealand (CMANZ) is a registered not-for-profit soclely focused on supporting and advocating for individuals impacted by cardiomyopathy. Patient-led, , our vision is that those impacted by cardiomyopathy in Australia [...]
Snowdome 2024 Haematology fellowship for work in AL amyloidosis
The AAN warmly congratulates Muhammed B. Sabdia, a final year PhD student at the Mater Research Institute, The University of Queensland who was awarded the Snowdome, 2024 Gunn family haematology [...]
Report from ISA Congress 2024 (Rochester)
The International Society of amyloidosis Congress was a fantastic week-long conference on all aspects of amyloidosis held in Rochester, Minnesota, the home of the Mayo Clinic. There were over 1000 attendees and [...]
Australian National Amyloidosis Day May 8, 2024 – video now available
May 8, Australian National Amyloidosis Day is a very important day for raising awareness about the group of complicated relatively rare diseases, referred to as amyloidosis. This year the Australian Amyloidosis [...]
Tafamidis for ATTR CA listed on the PBS from May 1
PBS listing of Vyndamax®(tafamidis) 61mg for patients with transthyretin amyloid cardiomyopathy (ATTR-CM) with NYHA Class I-II heart failure. For more detailed information use this link to the PBS website. Then click [...]
AAN Mayo Clinic Travel Grant Winners
Congratulations to the three young researchers who are heading to the International Symposium of Amyloidosis at the Mayo Clinic on AAN travel grants Photo by Leslie Beasley on Unsplash The AAN Board is [...]
Consensus recommendations on holistic care in hereditary ATTR amyloidosis
Hereditary transthyretin-mediated amyloidosis is a rare, progressive and potentially life- limiting multisystem disease, affecting every aspect of a patient’s life. This online international Delphi survey aimed to evolve clinical−patient-led practical guidance, [...]
Saluting Professor Philip Hawkins
The AAN was very proud to run inaugural AGM on 24th November. It signified a lot to us and reminded us of how far we come as an organisation. We invited Professor [...]
Introducing the AAN Blog
Hello and welcome to our AAN blog designed to post items by you and for you, about all things amyloid! We welcome blog submissions from all quarters of our amyloid community. [...]
Introducing the AAN Blog v2
Hello and welcome to our AAN blog designed to post items by you and for you, about all things amyloid ! We welcome blog submissions from all quarters of our amyloid [...]