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Pfizer funding to increase awareness about cardiac amyloidosis
Pfizer funding to increase awareness about cardiac amyloidosis St Vincent’s Hospital Melbourne and the Australian Amyloidosis Network are partnering on a project to increase awareness about an uncommon cause of a [...]
End of Financial Year Donation Appeal
End of Financial Year Donation Appeal Over 1000 Australians are currently being treated for amyloidosis - but did you know than an estimated 30,000 Australians are living with amyloidosis [...]
Amyloidosis Patient Experiences Survey (AMPES)
Amyloidosis Patient Experiences Survey (AMPES) St Vincent's Amyloid team invite all patients who have amyloidosis to take part in this research project. Amyloidosis is a significant health issue associated with a range [...]
Amvuttra (vutisiran) and Onpattro (patisiran) now listed on PBS
Both Amvuttra (vutisiran) and Onpattro (patisiran) are now listed on the PBS for treatment of hereditary ATTR amyloidosis with neuropathy The vutrisiran medicare PBS (Medicare) program opened for patients with hereditary [...]
National Amyloidosis Day, May 8
National Amyloidosis Day, May 8 National Amyloidosis Day, May 8 is a day the Australian Amyloidosis Network, AAN, marks to pause and think about those patients and families whose [...]
The AAN is proud to announce the launch of it’s Offical Facebook Page
The AAN Facebook page forms part of the AAN’s Communications Strategy and will be used as a news and announcement tool for important AAN updates/events for both patients and health professionals, [...]
CMANZ are looking for patients with ATTRwt to tell their story
Cardiomyopathy Australia New Zealand (CMANZ) is a registered not-for-profit soclely focused on supporting and advocating for individuals impacted by cardiomyopathy. Patient-led, , our vision is that those impacted by cardiomyopathy in [...]
Amyloidosis from Bench to Bedside and Back Again
Call for Early Career Travel Award Applications The International Society of Amyloidosis (ISA) will host on October 13-14 a small invitation-only workshop “Amyloidosis, from Bench to Bedside and Back Again” at the Collegio Fondazione Ghislieri in Pavia, Italy. To foster [...]
Snowdome 2024 Haematology fellowship for work in AL amyloidosis
The AAN warmly congratulates Muhammed B. Sabdia, a final year PhD student at the Mater Research Institute, The University of Queensland who was awarded the Snowdome, 2024 Gunn family haematology [...]
Report from ISA Congress 2024 (Rochester)
The International Society of amyloidosis Congress was a fantastic week-long conference on all aspects of amyloidosis held in Rochester, Minnesota, the home of the Mayo Clinic. There were over 1000 attendees and [...]
Australian National Amyloidosis Day May 8, 2024 – video now available
May 8, Australian National Amyloidosis Day is a very important day for raising awareness about the group of complicated relatively rare diseases, referred to as amyloidosis. This year the Australian Amyloidosis [...]
Tafamidis for ATTR CA listed on the PBS from May 1
PBS listing of Vyndamax®(tafamidis) 61mg for patients with transthyretin amyloid cardiomyopathy (ATTR-CM) with NYHA Class I-II heart failure.For more detailed information use this link to the PBS website. Then click on 'Authority [...]