Joyce Van Kleef
In 2013 I started to develop numbness and pain in my hands and legs. At the […]
Peter Stephens – Hereditary ATTRv Amyloidosis
Hi my name is Peter Stephens. I was finally diagnosed with hATTR Amyloidosis, (Thr80Ala) on 9/9/22. Although I had presented […]
Living with of Lichen Amyloidosis
My name is Sean, and my Amyloidosis story began in 2011 when I started experiencing itchy skin.
The doctors didn’t know […]
Amyloidosis and Multiple Myeloma – Susan’s Story
Like many people, I was looking forward to retiring, travelling, and trying to get fit – yet I was having […]
Cath Davies – This is my amyloid journey!
I’m a 62-year-young retired ICU nurse with a long career in critical care and medical education, so finding out I […]
Sue’s Story
My Amyloidosis Story
My name is Sue Birdsall and I am 79 years old. In April 2016 I was diagnosed with […]
My Amyloid Journey – Chris’s Story
Hello all, I’m Chris from Brisbane. (But really, I’m an old Kiwi, living in Brisbane since 86). I actually I […]
Geraldine’s Story
A long and difficult journey to a diagnosis of a disease I had never heard of.
In 2012 I started having […]
A diagnosis of Localised amyloidosis – My story
My journey with Amyloidosis began in November 2018 when I discovered an alarming protrusion on the surface of my right […]
Multiple Myeloma and ATTRwt : balancing two difficult diagnoses
In about 2006 I experienced chest pain, but my doctors came up with no explanation and it was put down […]
David Boyle – How the drug Darzelex SC, (daratumumab), saved my life.
I have AL amyloidosis and I want to tell you my story and encourage all of you to work together […]
AL, early remission and a heart transplant – Robin’s Story
My journey – from an active 57 year old cycling 250 km a week, completed his first triathlon, trekking in […]
