Living with of Lichen Amyloidosis
My name is Sean, and my Amyloidosis story began in 2011 when I started experiencing itchy skin. The doctors [...]
Amyloidosis and Multiple Myeloma – Susan’s Story
Like many people, I was looking forward to retiring, travelling, and trying to get fit - yet I was [...]
Cath Davies – This is my amyloid journey!
I’m a 62-year-young retired ICU nurse with a long career in critical care and medical education, so finding out [...]
Sue’s Story
My Amyloidosis Story My name is Sue Birdsall and I am 79 years old. In April 2016 I was [...]
My Amyloid Journey – Chris’s Story
Hello all, I'm Chris from Brisbane. (But really, I'm an old Kiwi, living in Brisbane since 86). I actually I [...]
Geraldine’s Story
A long and difficult journey to a diagnosis of a disease I had never heard of. Although I have recently [...]
A diagnosis of Localised amyloidosis – My story
My journey with Amyloidosis began in November 2018 when I discovered an alarming protrusion on the surface of my right [...]
Multiple Myeloma and ATTRwt : balancing two difficult diagnoses
In about 2006 I experienced chest pain, but my doctors came up with no explanation and it was put [...]
David Boyle – How the drug Darzelex SC, (daratumumab), saved my life.
I have AL amyloidosis and I want to tell you my story and encourage all of you to work [...]
AL, early remission and a heart transplant – Robin’s Story
My journey - from an active 57 year old cycling 250 km a week, completed his first triathlon, trekking [...]
Coral – My 17 years Living with AL Amyloidosis.
My Name is Coral and my symptoms started on boxing day 2001 when I woke with swollen ankles and [...]
Miracle patient’s survival thanks to Australian-firsts
Article by Lauren Barker (first published on Central Adelaide Local Health Network) Lyall Pearce was feeling fit and healthy, [...]
