Consensus recommendations on holistic care in hereditary ATTR amyloidosis
Hereditary transthyretin-mediated amyloidosis is a rare, progressive and potentially life- limiting multisystem disease, affecting every aspect of a patient’s [...]
Positive progress towards Medicare funded access to Tafamidis and Patisiran for ATTR
PBAC has recommended PBS listing of Vyndamax®(tafamidis) 61mg for patients with transthyretin amyloid cardiomyopathy (ATTR-CM) with NYHA Class I-II [...]
My Amyloid Journey – Chris’s Story
Hello all, I'm Chris from Brisbane. (But really, I'm an old Kiwi, living in Brisbane since 86). I actually I [...]
Saluting Professor Philip Hawkins
The AAN was very proud to run inaugural AGM on 24th November. It signified a lot to us and reminded [...]
Introducing the AAN Blog
Hello and welcome to our AAN blog designed to post items by you and for you, about all things [...]
Introducing the AAN Blog v2
Hello and welcome to our AAN blog designed to post items by you and for you, about all things [...]
Geraldine’s Story
A long and difficult journey to a diagnosis of a disease I had never heard of. Although I have recently [...]
Coronavirus: Instructions for amyloidosis patients
Vaccination is vital to help control COVID-19 and keep you and the community well. If we in Australia [...]
TTR Amyloidosis, A webinar, UKATPA, December 1 UK, December 2 AUS
The UK ATTR Amyloidosis Patient Association is organising a free webinar. Topic: "Diagnosing ATTR Amyloidosis" Speakers: Professor Juliane Gilmore and [...]
A diagnosis of Localised amyloidosis – My story
My journey with Amyloidosis began in November 2018 when I discovered an alarming protrusion on the surface of my right [...]
Patient Experiences
Find and share the stories of real people around Australia and their personal experiences of Amyloidosis. [...]
Multiple Myeloma and ATTRwt : balancing two difficult diagnoses
In about 2006 I experienced chest pain, but my doctors came up with no explanation and it was put [...]
